Until Further Notice
Not to state the obvious (which I readily admit I do), but to be given a terminal diagnosis: stage IV, non-small cell lung cancer, along with a rather disappointing prognosis: "13 months to two years" is a challenging set of extremely unexpected (given my immediate family’s medical history) circumstances. I don’t want to say that I live under a dark cloud – because I don’t like the negative implication or reaction it conjures, but I definitely feel as if I have a metaphorical sword of Damocles hanging over my head; which I only refer to as an-out-of-context Three Stooges reference wherein a non-Stooge was innocently standing under a pie which Moe had thrown to the ceiling and there it stuck, hanging precariously over the character’s head. Now I still don’t know the proper historical context of the sword of Damocles, I only know the Three Stooges version, but there was some imminent danger involved (not death, mind you), but rather a falling pie which ultimately landed flush on the character’s face as she looked up to make further inquiries. Nevertheless, pie issues/references notwithstanding, having seen my oncologist today while being infused and receiving a big smile/ "you’re going great"/thumbs-up set of gestures/reactions while reclining in my Barcalounger with a chemotherapy I.V. dripping medicine into my right arm, is the kind of super-positive feedback with which I can live. Along with my every-three-week pre-chemotherapy lab work and my every-three-month CT Scan followed by my every-three-month face-to-face appointment with my oncologist, this is how I roll. Worrying about upcoming tests, waiting anxiously for results, trying not to anticipate good, bad or indifferent; living day to day and trying to appreciate my good fortune and the unexpected above-average quality of life with which I’ve been blessed – for a terminal cancer patient, that is.
Editorial: Fundamental Freedom To Choose To Marry
Virginia is historically slow in extending rights.
In 1967, Virginia was one of 16 states that banned interracial marriage and had criminal penalties for violators. Mildred Jeter, an African-American woman, and Richard Loving a white man, married in 1958, were convicted and banished from living in Virginia for 25 years to avoid serving a one-year prison sentence
Letter: Correcting Error on Mental Health Services
Fairfax County serving more people now.
A Feb. 11 editorial by Mary Kimm, referencing reporting by Michael Pope, makes an incorrect assertion that our services to people with mental illness in Fairfax County have been “dramatically cut back.”
An Unexpected Present
Not that I minded it in the least (in fact, I appreciated it in the most), but I received my first senior discount the other day. I was fast-fooding at my local Roy Rogers restaurant when the unexpected kindness occurred. Considering that I’m not at the age yet when such discounts are typically available, I certainly did not (do not) presume that my appearance somehow reflects an age which I am not. In truth, I don’t believe it does. So even though I didn’t ask for the age-related discount, I was offered/given it nonetheless. As the cashier tallied my bill, she then spoke the price and adjusted it downward 10 percent for my surprise "senior" discount. On hearing the lower price and the reason for it, I immediately responded: "Oh, you’re giving senior discounts to people over 40?" To which she replied, while looking me directly in the eye: "No. Over 30." Laughing at her quick-thinking quip, I thanked her again for the discount and commended her on her excellent answer/customer service.
Editorial: Pet Photos, Stories for Pet Connection
The Pet Connection, a bi-annual themed edition, will publish Feb. 26. We invite you to send us stories about your pets, photos of you and/or your family with your cats, dogs, hamsters, snakes, lizards, frogs, rabbits, or whatever other creatures share your home or yard with you.
Editorial: For Nonpartisan Redistricting
Virginia is a purple state, gerrymandered to bleed red.
Consider that in statewide elections, Virginia voters have chosen Democrats in the last two presidential elections, for U.S. Senate, for Governor, Lieutenant Governor and Attorney General. Almost none of these elections was by a wide margin, but it’s clear that Virginia is a purple state leaning blue.
Editorial: Few Thoughts on General Assembly Action
Yes, allow homeschoolers access to programs in public school.
It’s possible that this is not the right bill exactly, and in general, we favor local control. But it is wrongheaded of public schools to force families into a take-it-or-leave-it position.
Pet Photos, Stories for Pet Connection
The Pet Connection, a bi-annual themed edition, will publish Feb. 26. We invite you to send us stories about your pets, photos of you and/or your family with your cats, dogs, hamsters, snakes, lizards, frogs, rabbits, or whatever other creatures share your home or yard with you.
Piece of Mind
Today I was eating a Tootsie Roll, and while chewing it, felt something sharp against my gum. Knowing my candy, sharp I should not feel, so immediately I stopped chewing in hopes of locating the sensation; which I did. It turns out that I broke off the top half of a previously (years ago) installed dental crown. Fortunately, the crown was still in my mouth, so I was able to retrieve it. Upon closer examination of it and the now crown-less tooth, it appears that the crown and the tooth are completely intact (undamaged) and perhaps a simple re-cementing at the dentist’s office awaits, a repair achieved much less expensively than replacing the entire crown. (I can hope, can’t I? After all, I am a cancer patient; hope is what I do.)
Confused and then Infused
Since March 6, 2009, nearly five years now, save for nine months when I was taking an oral chemotherapy medication at home, every three weeks I have been infused with some sort of chemotherapy drug. In that time, I have certainly become familiar and fairly well-known to the various staff at The Infusion Center. What follows is the most recent exchange with the receptionist in Oncology, as best as I can recall it.
Editorial: Extend Health Coverage in Virginia
Standing on what is essentially scorched earth, Republicans in the Virginia General Assembly have condemned hundreds of thousands of poor Virginians to living without health coverage even though it would be fully funded by Federal money for the next three years, and with Virginia paying 10 percent after five years.
Friends Forever
Since it had been more than a few months, today I summoned up the courage to Google my long-time friend and fellow stage IV lung cancer survivor, Suzanne. Suzanne and I had been years out of touch (for no real reason other than initiative and the geographic consideration that she lived in Barnstable, Ma. and I live in Burtonsville, Md.) and recently back in touch – due to our identical cancer diagnoses. I learned that she had succumbed to her disease back in October, 2013. We last had contact electronically back in the summer. She was extremely weak then, she said, too weak to talk, so e-mailing was best. In that e-mail, ultimately her last, she wrote that the most recent chemotherapy drug with which she was infused was no longer effective and that her oncologist had no other drugs left to recommend. Not that she said it in so many words, but at that point her prognosis was grim. She offered that her two boys were with her and from them she would gain great comfort. The news was very unsettling to me and I was afraid that this e-mail might be our last – and so it was.
Education, Transportation, Mental Health
Del. Bulova unveils his legislative priorities.
Greetings from Richmond! The 2014 General Assembly is now in full swing. In addition to considering nearly 2,000 bills, we will adopt Virginia’s biennial budget, which must be balanced as required by Virginia’s constitution. Thanks to everyone who has contacted me about issues throughout the year. This session I have introduced 13 bills and several budget amendments. Below is a summary of issues and initiatives I will be working on during the 2014 session.
In Case Someone Is Wondering
I don’t mind being alive, really I don’t. Occasionally though, I receive well-intended inquiries – electronic and otherwise, from people (who know my cancer story) who are sort of wondering if perhaps I’m not. When people haven’t heard from me in a while – and this is a category of people with whom I don’t have regular/recurring interactions, but rather a group of people who reach out and attempt to touch me (figuratively speaking) every three or four months or so – there is a presumption on their part that my silence (so far as they know) is not in fact golden, but rather ominous, as in the cancer might have won and yours truly didn’t. And when I respond, their pleasure/relief at my not having succumbed to the disease is quite positive, generally speaking. Their honesty and joy in learning that I’m still alive is both rewarding and gratifying. Rewarding in that they care and gratifying in that I must be doing something right which enables me to sustain myself through a very difficult set of medical circumstances: stage IV, non-small cell lung cancer, the terminal kind (is there any other kind?).
Living With My Decisions
On multiple occasions throughout my nearly five years of being treated for stage IV, non-small cell lung cancer, my oncologist has given me opportunities to stop and/or take a break from my treatment, or to consider alternatives to the normal protocols – for the expressed (literally) purpose of sustaining/enhancing the unexpected, above-average quality of life I have mostly experienced during my nearly non-stop, every three-week chemotherapy infusions which began in early March, 2009. The goal being to enable me to enjoy my life and not be subjected to/beaten down by the ravaging and debilitating effects of chemotherapy.